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The Mark A short story published in Decoded's 2022 Pride Anthology Link: Decoded Blog Story Text: Addie grimaced and shut the file she’d been reading over. She wasn’t sure why she’d opened it again. There would be no new information; her assignment was the same as it was two weeks ago. Find Jamie Lawson, the twenty-two-year-old medical student from Queens, and cross her off the list with a well-placed arrow. It would only take a moment. Addie’s aim was impeccable and she hadn’t missed in years. She was simply avoiding it, and people were starting to get suspicious. She could feel the whispers. The job had started routinely enough. But Addie had encountered a problem she’d never had before. Normally she could regard her targets with the cool indifference that befit her position. Find the mark, memorize their comings and goings, put a perfectly timed arrow through their heart, and be done with it. Fill out the necessary forms and turn the paperwork back in to the agency. No complications. That was how Addie lived her entire life. When someone from work asked her to go out for dinner, she declined. When someone invited her to one of the agency’s endless networking events, she declined. Socializing was nonessential, as far as Addie was concerned, and would merely invite unwanted complications into her life. Or, that was how she used to think, at least. Truth be told, she wasn’t sure why things had changed. But they had. She’d been tailing Jamie a week before, silent and invisible, flitting from alleyway to alleyway as her target made her way home from a late night at the hospital. Jamie stopped at a crosswalk and a ways behind her Addie notched an arrow, and aimed. Suddenly, Jamie had bent down, and the arrow flew harmless over her head, burying itself in a bush across the way. Addie cursed silently and moved to notch another arrow, when she glanced back at Jamie again. The streetlight was shining into her hair, a thick mess of dark brown curls. She’d stooped down to pick up a glass bottle, shattered on the curb, and deposited the pieces carefully in a trashcan. The light changed, she moved into the street, and Addie lost her chance. But something had happened in that moment. Every time she tried to draw her bow to shoot Jamie, Addie’s hands shook, or she saw something in the way, or her heart sped up too fast to regulate her breathing in order to get the correct draw. She couldn’t do it. Sitting silently on a park bench near her apartment, Addie watched Jamie smoke. She thought it was a strange habit for a medical student to have, but she liked the way the soft glow of burning ashes and streetlights almost made Jamie’s skin look like it glowed from underneath. She ran her fingers down the head of the arrow sitting across her lap. All she had to do was take up her bow and loose the arrow. It was a long shot, but she could make it, she knew that. It would hit Jamie square in the chest, then she’d finish her papers and forget all about her. It would take minutes, if not less than that. But she couldn’t do it. She’d let her feelings interfere with her work, and the minute she admitted that, she knew she was done for. But she couldn’t just walk up to the office and hand in her bow. They would simply reassign her to a desk job, something internal. She’d never see anybody again, let alone Jamie Lawson, the twenty-two-year-old med student who smoked too much and wore thick wool sweaters. Her mind made up, she returned the arrow to the quiver strung across her back, and went back to her apartment. Addie stared at her reflection in the bathroom mirror. She was naked, goosebumps dotting her skin. She’d taken her long hair and tied it up in a bun to get it off her back. She liked her hair, and she’d hate for it to get messy. And this would be messy. She took a moment to steel herself, taking a deep breath and a long gulp of vodka from the bottle on the ledge of the bathroom sink. She couldn’t actually get drunk, but the idea of dulling the pain made it easier. Closing her eyes, she wrapped her arms around herself to her back, the bones of her back and shoulders visibly straining beneath the tension of her skin until it rendered her body nearly unrecognizable as human, and tore. She hissed with pain as she wrenched handfuls of feathers and spines from her back. Immediately her skin burned, agony running through her veins. But she took a breath and continued, ignoring the blood and pain as she ripped every last feather from her flesh. The muscles supporting her wings twitched and screamed, and she could feel her whole body crying out, not just in pain, but in protest as she ripped away what she had once thought of as her defining feature. But she was tired of only being allowed to think of others. It was time to put herself first. As she yanked the last feather from her back, there was a blinding flash in her apartment. Addie didn’t notice, her head light from the blood dripping to her floor from the gashes in her back where her wings once were. Her floor was a mess of feathers and cartilage and blood. “WHAT do you think you are doing, Adirael?” a furious voice hissed. “I quit.” “You didn’t have to rip your wings out to quit, you know! I thought you liked being a Cupid! I would have reassigned you if you had just asked!” Aphrodite seethed, her rust-colored hair roiling like ocean waves in a storm and her bright eyes burning with the very light of Heaven. “I don’t just quit being a Cupid. I quit being an angel. I want to be human, mortal. I’m tired of this. I’m done.” “Is this why you’ve been so late to your work?” “I’m tired, Your Heavenly Grace. I’m tired of only ever giving love to others. I’d rather feel it for myself. Maybe that’s selfish. I don’t think I care.” Addie shrugged. “You can either retire me and let me live out the rest of my days as a mortal, or I’ll do it the hard way. I’ll fall.” The angel looked hard at her superior. “Consider yourself mortal,” the higher angel grimaced, before extending her hand and plunging it into Adirael’s chest, the entire room filling with a white-hot glow as she pulled Adirael’s grace from her heart. In another flash, Aphrodite was gone. Addie breathed a sigh of relief, before promptly putting on a loose t-shirt over her still-bleeding shoulders, the pain and blood loss hitting her harder without the aid of her angel’s grace, and then a pair of sweats. She stumbled out into the street, intending to call a cab to take her to the hospital. She fainted as soon as she reached the sidewalk. Addie groaned. There was a bright light behind her eyelids, and for a moment she thought herself back home, in Heaven, the lights of Salvation Shore filling her mind. But the ache in her back soon filled her head instead, reminding her of the memory of ripping her wings off, feather by feather. Reminding her that she’d surrendered her grace. Reminding her that she was human. Groaning in pain again, she opened her eyes. The blinding light was just a fluorescent bulb in a hospital ceiling. Addie blinked, orienting herself. Carefully, she sat up. The pain screamed in her muscles and in the tender skin of her shoulders, and she nearly yelped from the sudden sensation. On the other side of the room, a resident turned around. “Oh, good,” a smooth and familiar voice called out. “You’ve come to. You had me worried there for a bit. Nasty set of wounds on your back there. Woulda thought you’d ripped a set of wings off if I didn’t know better.” The young woman grinned. The haze of pain finally faded enough for Addie to recognize her. Jamie. Something like the fluttering of her wings stirred in her, and she looked down, confused. But she realized it was only the butterfly-wing beat of her newly human heart.

choosing irresponsibility A personal essay published by UDSA's Kaleidoscope in January 2020 Link: Full Issue Text: The summer before my senior year of high school, I had somewhat major knee surgery. For the majority of the vacation, I was laid up in bed with my left leg in an isolator brace, working on AP summer homework and wasting time on the internet. But towards the end of summer, my at the time long distance boyfriend came to visit from out of state, and I was stubbornly determined to have a good time. So with my then-boyfriend, my mom, and a pair of bedazzled crutches in tow, we set off for San Francisco’s Ocean Beach. See, my mom was born in Oakland, and used to build boats for a living. I love the ocean. Water is in my blood. I love the drive down Geary Street, through the San Francisco hills, watching the ocean peek over the horizon, rolling down the windows to smell the salt in the air get closer and stronger. So, I had a singular goal in mind that day: walk along the edge of the ocean. This meant I had to get to the edge of the ocean from the concrete steps leading down into the sand. Sand is not really a substance that takes well to crutches, so I abandoned mine with my mother and set off all by my stubborn self. The brace I had on my left leg prevented me from bending my knee more than a few inches, so with each step, as I sunk into the sand, I swung my left leg up and around to take another step forward. It was agonizing. I don’t know how long it took me to make it to the part of the beach where the sand was damp, where it was a little easier for me to move, but I did it. I made it to the edge of the water. And I didn’t just stand there, either. I walked along the water for a few minutes. I felt the ocean breeze. The crisp chill, the salt smell that settles into your skin. I toed off my flip flops, ones I shouldn’t have even been wearing, and buried my toes in the cool, damp sand. The waves lapped gently over my feet, and I watched idly as the sand streamed out to sea once more. And then, when the ache set in, I turned around and walked all the way back to the concrete steps. For the rest of the day, my left leg ached and burned as I walked. The aftermath of my beach jaunt sat heavy behind my kneecap, like a fist tugging at my nerves. I leaned heavily on my crutches, and frequently needed to stop and rest. But I didn’t regret it. I’d done what I’d set out to do, what I had wanted so badly to do. My physical therapist would have likely had my head for it, having told me mere days before that I needed to be on my crutches for several more weeks, minimum. But as much as he was right, I also needed to dip my toes in the ocean. I needed to know I could push myself, and make things happen. This is not meant to be inspirational. Sure, I stubbornly did something I probably shouldn’t have, but that’s not brave. That’s irresponsible. Which is what this is really about. When you have a disability, you have to pick and choose when you can be irresponsible. Sometimes, you do things you shouldn’t because you have to for work, or school. Sometimes, you do things you shouldn’t because you deserve to still live your life and have fun. It’s important to note that no one should use me, or anyone else, as an example of what they can or can’t do as a disabled person, or what they are or aren’t capable of. My limits are my own, I know what they are, and it’s my choice to cross them for whatever reason. I just want everyone out there to know it’s okay. It’s okay to draw the line in the sand and refuse to do something, but it’s also okay to overextend yourself to have a little fun. Fun is important. Sometimes, in the name of fun, you have to say ‘screw it’ and put yourself out of commission for a few days. I still struggle with walking long distance. I have a genetic disability, and it affects my joints. In day to day life, I am mindful of this. I wear my orthopedic insoles. I only wear sandals with arch support. I have two sets of ankle braces, one for tennis shoes, and one for my sandals. When I’m home, I keep my legs propped up to reduce swelling. But if I spent my entire life only ever making responsible choices for my disability, I would never enjoy myself. The first time I ever attended a poetry slam, it was the middle of an especially cold and wet winter, and I was on prednisone. Prednisone is an immunosuppressant, not exactly the kind of medication to be on if you’re going to go be in a room full of people a week after the snow melted. But I was bound and determined, just like that day on the beach, to have a good time despite my medical circumstances. So I went. And it was one of the best experiences of my entire life.I made the decision to switch from the open mic to the slam contest, something I never would have had the courage to do even a year before. I met two of my favorite poets. I competed against one of them. I got home exhausted, so exhausted I ended up missing class the next day, but that night on the phone my mom said I was the happiest she’d heard me in years. Then, that Wednesday I got a fever. Then a cough. I ended up missing several days of school because I got a terrible chest cold, and I know it must have been because I went out that night. But it was worth it. When you’re disabled, sometimes you have to make the choice between the right thing to do and the thing you want to do so badly you can feel it burning you up from the inside. Sometimes, you have to walk to the beach, even if it makes your leg burn and ache. Sometimes, you just have to do something, even when your body protests.

on loving zombies a personal essay on zombies, addiction, and pop culture when i was a freshman in high school, i joined the drama club. it was 2007. i had one friend, olivia, and she was a year older than me, and joined the drama club herself the year before, and dragged me in with her when i got to high school. now, in 2007 i was painfully shy, painfully awkward, and, most importantly, painfully lonely. drama was absolutely not the kind of thing i expected to get involved in, but she was my only friend, and also, i was in the closet and in denial about it and kind of in love with her, so when olivia said ‘jump, pookie!’ (that was her nickname for me) well, i jumped. plus, things at home were getting dicey, and let me tell you, high school theatre eats up a LOT of time. at 14, or at 27 for that matter, i would much rather have listened to our director scream about the pronunciation of newark than sit at home alone with my father. before i joined the drama club i had little to no interest in horror movies, monster movies, or anything like that. you would have been exceedingly hard-pressed to get 2007-2008 me to watch a movie about murder, or zombies, or monsters, or anything like that. as a kid, i was an exceedingly sensitive child, and considered the likes of ‘the lion king’ to be ‘too scary’ for me. newly immersed in the drama club, i got signed up to work my high school’s annual haunted house. if you ever walked into like, the nerd merch portion of a big bookstore between 2005 and 2010, chances are, you saw a LOT of zombies. and theatre kids, i discovered, were very into zombies. they did the makeup. they went to zombie runs. they held scary movie parties. i played along, and i got pretty into horror, as a genre, but while the make-up was fun, i wasn’t ever fussed about zombies. what was there to be afraid of, i thought. the zombie makes no biological sense, as it has no way to digest all the flesh and brains it eats. it would eat and eat and eat, until it either exploded or could no longer move, like a sitcom father at the thanksgiving dinner table. (i am much more fun at parties now than when i was 15, i promise.) so what was there to be afraid of? what was the terror of the zombie genre if we assume the zombie is a biological impossibility? the zombie, as americans know it today, was largely established by george romero’s two classic films, the night of the living dead, and the dawn of the living dead. coming out in the sixties and seventies, these films took zombies from appropriated haitian ritual figures to household names in the world of politically inspired american horror. (the night of the living dead is best known for having a black male protagonist who survives until the very end of the film. if you have ever seen a horror movie, you are probably aware of the trope where the black guy dies first. the dawn of the living dead shows a siege of mindless drone zombies on a shopping mall, and i don’t think you could come up with a more on the nose metaphor for capitalism if you tried.) it’s changed since then, of course, and it was a lot of things between its introduction to the american consciousness and its place today as the default apocalypse scenario. largely, i attribute this lack of interest in zombie media to my general lack of interest in apocalypse media, and ever since romero introduced the idea of hordes of zombies, those genres have been pretty much one in the same. say ‘zombie’ these days, and you think ‘zombie apocalypse’. you know the stories. world war z. the walking dead. even shawn of the dead, while an obvious parody, features a world ending zombie contagion. maybe now we’ve branched out a little, with genre pieces like warm bodies (a romance), or pride and prejudice and zombies (exactly what it sounds like), but for me, the idea of zombie media is still part and parcel of the apocalypse craze. apocalypse media has never really interested me, and i could never articulate why until i took a class on apocalyptic and dystopian fiction, and the teacher pointed something out. the appeal of apocalypse fiction, of dystopian fiction, of fiction about an outbreak bringing the world to its knees, is that the reader envisions themselves as the heart of the situation. we see ourselves as those sole survivors, the people who beat the odds to come up on top of monsters and mass destruction. so, if you can’t see yourself in that position, the whole genre kind of loses its appeal. and let’s be honest, in an apocalypse scenario, i’m screwed. i’m not saying that to be mean to myself, i’m saying it because it’s true. i have depression, anxiety, probably autism and/or adhd, i’m physically disabled, i’m dependent on numerous medications, i’m fat, and i don’t do well under pressure. i am not the rugged individualist daryl dixon rick grimes redneck that saves the day. i’m the collateral damage in the initial outbreak. i’m the dead body in an abandoned pharmacy. when i do enjoy zombie media, it tends to be the more tongue in cheek self referential kind, like the movies zombieland, or cabin in the woods, or the incredibly tasteful zombie strippers. these are all movies that are as much about how we as americans see zombies and “zombie culture” as they are about, well, flesh-eating monsters. however, this dislike has never stopped me from obsessively watching zombie media and other horror movies, the same way my medical trauma has never stopped me from having a strange preoccupation with medical mystery dramas. reasons like these are pretty much why i dropped out of watching the walking dead, too. i watched it for a little while, mostly because my mom did, and we were frequently in the living room together, but the only character i cared about was beth greene, whom my mother could not stand, and who goes missing in season 4 and is almost immediately killed after she is found again. my mom hated beth greene because objectively she did not belong in this gritty zombie apocalypse story, and that is precisely why i liked her so much. she was the only character who made any sense to me. at the beginning of the show, beth is recovering from a suicide attempt after the loss of her mother. despite this, and despite her lack of traditional survival skills, she is important to the group because she helps care for judith (the protagonist's infant daughter), and because she is the emotional and optimistic core of the group. beth greene wanted to die and woke up anyway. beth greene saw her whole world fall to pieces, and found a way to keep a smile on her face and a song in her voice. but my mom, and large swaths of the fandom, hated her. we often hate female characters in violent situations who do not give up the traits we see as ‘soft’ and ‘feminine’, instead wishing they would ‘grow a pair’ and ‘stop whining’, or whatever it is the obnoxious lonely white men are saying on the internet these days. but beth green wore pastels and fell in love and played the piano and sang songs, even with the world crumbling around her and her home destroyed and her faith shattered. “i still sing,” beth greene says “i sing anyway” she tells us, staring at a piece of artwork in the hospital that will become her funeral pyre, after she’s killed for finally showing the nerve people have been begging for her to have since season 2. this is, not coincidentally, when i give up on the show as a whole and completely stop caring. (another way in which beth greene shows what i hate about zombie media is in how she died and someone else didn’t die. when beth green’s temple gets grazed by a bullet, she’s dead in an instant, but when carl grimes, son of the protagonist rick grimes, gets shot in the eye socket, he lives to kill zombies another day. apocolypse and horror media love few things as much as they love to kill women and minorities who do not suit their particular power fantasy) but i’m realizing now, in the heart of this pandemic, as we talk about apocalypse stories and zombie stories and contagion stories, that the other reason i don’t like zombie media is i don’t think any of it has ever truly tapped into what i see as the true existential terror of the living dead. the original myth gets closest to what unnerves me about the concept. the “zombie” originated as the zombi amongst the west african slave populations living in haiti. an aspect of the closed belief system of voodoo, a zombi was a person who died of unnatural or suspicious cause, causing them to linger in their graves and be vulnerable to witch doctors, who would use the reanimated dead for their own purposes. nowadays, this concept more closely resembles fantasy necromancy than anything in the actual genre of zombie films. but american zombies are largely just metaphors for other things. fear of the other, race relationships, capitalist greed, nuclear power, the red scare. the zombie is just a mask our greatest fear of the decade happens to be wearing because it is such an easy metaphor to use. the zombie is a mindless horde wearing a human face, representing whatever we currently think is going bump in the night. the ultimate terror of the zombie, present in its earliest incarnations and lost in the current pop cultural flood, is the fact that it looks human. not only does it look human, but it might even look like someone who loves you. this isn’t to say zombie media never deals with this aspect of zombies. every story with a zombie in it has a plotline where someone angsts over a zombie wearing the mother or father or child or lover’s face. but nothing ever focuses on it, nothing ever gets to the heart of the matter. technically speaking, the show supernatural does not contain any true zombies, but the series deals heavily with demonic possession in a way that, thematically, is pretty similar to zombies. a slavering beast wearing a human face. often, the demon wearing the human as a fancy suit knows their thoughts and memories, and can taunt their loved ones, who know that underneath the monster, their mom, or dad, or spouse, or child or friend is trapped and struggling. when i decided to write about zombies, a woman on supernatural was sobbing hysterically as a demon wearing her husband’s dead body called her name in his voice, over and over. she knows that he is dead, she watched him drink the drain cleaner that killed him. but the others still have to stop her from letting in the monster with her husband’s voice. when i was young, my dad and i were very close. my mom says when i was first born, all i wanted was my dad. i would nurse on his fingers, completely unaware this wasn’t accomplishing anything. i was, after all, mere hours old. as i grew into less of an infant and more of a human being, my dad and i remained close. he helped me practice for softball and taekwondo. he let me put barettes in his hair, and makeup on his face. (my mother, the construction worker and born and raised 60s/70s hippie had little patience for this sort of thing, and was grateful my father indulged me, for all three of our sakes.) we played doctor, and i would declare him with child, due to a condition i invented called ‘women’s pregnancy disease’. we went on long walks with the dog on our land lady’s property, looking for blackberries, and fossils, and native american arrowheads, and cool rocks. he built me popsicle stick houses, and played legos with me for hours. he would lay on the living room floor, shirt off, face in a pillow, and let me draw shape after shape and squiggle after squiggle on his back in washable marker. when i was little, i called fireworks booms. every fourth of july, i was excited to go see the booms with my mom and dad. while we were never an especially patriotic family, we did have extensive fourth of july traditions. blankets, popcorn, and hot chocolate. we would load everything up in one of the two family cars, usually my dad’s, unless something was busted. we’d drive down to the open field in our small town, and lay out on the blankets with our snacks and drinks, as close to the fireworks as we could safely be. one year, when i was very young, barely old enough to remember, a spark from the fireworks caught on the grass, starting a small fire. my dad went to help the local firefighters. he was like that, back then. he liked to help, even if it wasn’t the best idea, like the time he tried to catch a falling screwdriver with his bare hands. it took ages for him to come back. it was cold, and late, and loud, and i was scared, and i wanted my dad, and i wanted to go home. he had the keys to the car, so i stood with my mom, or maybe i was small enough she held me. when he finally got back, i clung to him. the next few years, i insisted we watch the booms with all three of us safe inside the car. so we did. he was a different person, eventually. in zombie media, when the character angsts over killing their living dead loved one, they always end up being able to do it. they always end up being able to separate the past from the present, to say ‘this monster is not the person i once loved’, and they take care of business. i have never thought i would be very good at taking care of business. i am too soft, too gentle, too empathetic. if my life were a rugged apocalypse show, i would be the beth greene character no one in the audience knows what to do with. i cry when my neighbors fight, even if they are perfect strangers. i used to wander the playground at school after the rain let up, and return stranded worms to the wet earth, because i felt bad for them. when i am on the phone with my father, and he is dying, i tell him i love him, even though i am not sure if i actually mean it. this is all to say that i don’t think i could bring myself to shoot a monster wearing the skin of a person i love. i could not behead a zombie with my best friend’s face. i could not shoot the beloved family dog if it caught rabies. it took me years of struggling to give up on my father, and i don’t know if i ever really did, in fact, give up. if i’d really given up, i don’t think it would have hurt when he died. a friend of mine wrote a poem once, about the walking dead. about how she could never give up on the show, because she could never give up on the idea of a second chance to say goodbye to a dead loved one. her mom died unexpectedly when she was 13. when my father died unexpectedly, i was 21, and we hadn’t spoken in nearly two years. and i guess that’s the difference between losing a parent loved and young, and losing a parent slowly to addiction. my father did not crawl from the grave a slavering monster. i watched him turn before my eyes. i watched him become a different person. or at least that’s what i told myself. i told myself he was a different person, because the person i had known and loved as a child would not do the things he did, and i had no other way to reconcile that. i did not lose my father, and then have him come back as a monster, as much as i told myself that was what had happened. i watched him change, every day, every week, every month, every year. i watched as his cheeks and eyes sunk in, and as his flesh began to grey and slide off his bones, and as he stopped speaking and started groaning. i watched my father turn into a monster, but i could not murder my dad, so i simply told myself that he was dead. that this zombie was not the corpse it had reanimated, but a different beast entirely. and that, to me, is the heart of the zombie. this is what we’re really afraid of. more than the unknown, more than our implicit racial biases, more than the evils of capitalism, more than the people we have sublimated for years. more than any of that, we fear the transformation of those we love into something awful, something inhuman, something more monster than man. this fear is everywhere in modern western fantasy. the zombie. the vampire. the werewolf. the shape shifter. the evil ghost. doppelgangers. evil twins. clones. demonic possession. we fear nothing more than we fear being turned on by our loved ones. the most interesting modern interpretation of the zombies is, in my opinion, the 2016 film pride and prejudice and zombies. i have no idea if the book the film is based on portrays zombies the same way, because i haven’t read it, but i did see the film in theatres with my partner on valentines day, and we liked it enough to buy it on dvd. in pride and prejudice and zombies, while being a zombie is a disease, being a monster is a choice. the dashing but secretly evil george wickham takes lizzie bennet to a church partway through the film, and the church is full of zombies. there is a service in progress, and every pew is lined with the undead, but they are speaking, and partaking in communion, and listening to the priest. all of them have been bitten, infected, but not one of them has become a true monster, because none of them has eaten a human brain. by subsisting on pig’s blood, the zombies could remain sentient. they could keep themselves from hurting others. (this was not wickham’s plan, but that isn’t exactly relevant here. besides, anyone who knows anything about pride and prejudice knows wickham is, always, a bastard.) the bite, an action they have no control over, did not make those people monsters. their actions did. addiction did not make my father a monster. his actions did. my father was not a monster because he drank, or because he smoked weed, or because he had a horrible childhood. my father was a monster because of what he did. my father was a monster because i handed him my heart, and he took a bite.

performing disaster A personal essay on being disabled at an art school. performing disaster on being chronically ill at a private art college at art school, it’s cool to be a mess. it’s cool to not sleep at all and drink six cups of black coffee and smoke american spirits. at art school, you perform disaster. you craft a narrative that makes you as tired, as messy, as overworked as possible. this is how we measure ‘success’. at art school, the best thing you can be in a slow motion trainwreck. let everyone watch you burn. how fucking magnificent you are as you fall apart. the last time i pulled an all-nighter was over a year ago. it exhausted me to the point of dysfunction. the next day i could barely walk. i spent all night like the ideal art student. on the floor, hands and knees, painstakingly moving the parts of a stop motion animation, my saint of a boyfriend snapping photos for me from a tabletop, because even then i knew i could not do it alone. see, i didn’t know the name yet, then, but i have a genetic disorder. ehlers danlos syndrome is a series of conditions and symptoms caused by defective collagen. in layman’s terms: i’m floppy. medically, i am not supposed to kneel. i have known this since middle school. but i did it anyway, because that’s what art school is. it’s doing the thing that hurts you in the name of art with a capital a, even if it might be better you know, not to actively cause yourself harm. but that isn’t cool, and art school is all about cool. at art school the coolest thing you can be is a slow motion trainwreck. a jack kerouac roman candle, burning yourself at both ends. everyone will watch you burn fabulously. everyone will love you. everyone will love you and it won’t matter if you haven’t slept, haven’t eaten, can barely force yourself to stand. academia was not built for me. academia was not built for anyone like me. you can see it the minute you open an article about academia and disability and see person first language. ‘persons with disability,’ instead of ‘disabled person.’ see, the implication here is we are not defined by our ability level. the thing is that i am. you cannot separate me and my disability, you cannot separate me and my genetics, cannot separate my body and broken. disability is my reality, it is my only reality. people used to call frida kahlo a surrealist, a title she fought. this was her reality, she argued, painting the pain her body was wracked with into every painting. painting her trauma in bright primary colors. starkly visible. impossible to ignore. all roses come with thorns. when i read a slam poem about my body, about my mind, about the ways in which i just don’t work quite right, someone always thanks me. someone always tells me they’re grateful. glad someone stood up, someone said it, someone brought it all into the light. poets also perform disaster. but it is less we are performing disaster and more like we are opening the bedroom door. we are crying on stage. we leave the bathroom door open and do not run the shower and our roommates hear us sobbing. we are dysfunctional and we are loud and we are loudly dysfunctional. i will shut my eyes to stage lights and shout to strangers all the ways in which i am not right until they understand. until everyone understands. at art school, it’s cool to be a mess. but only if you can still go to class. it’s cool to be a mess, but you still have to play into the system that was not built for you. they give you accommodations but they are a rickety stepladder and you need an elevator. they are a rickety stepladder and you just need to lay down. you are a roman candle and you are burning at both ends and you are crossing your fingers and hoping to god you live until graduation.

Putting Pain to Paper: Memory and Trauma as Craft The text and images in the following link are my final thesis paper from my MFA program. They have been linked as opposed to pasted directly for the ease of formatting. Link: Putting Pain to Paper on Gdocs

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